Cord Blood Registery CBR
http://cordblood.com/dtp/index.asp
(888) 932-6568 to speak to a cord blood educational specialist.
National Down Syndrome Congress
800-232-6372
www.ndscenter.org
Sharing Down Syndrome Arizona
http://www.sharingds.org/
Ryan House: Respite care home for children with life limiting conditions. Located in down town Phoenix: Ph: 602-200-0767 Fax: 602-200-0768
http://ryanhouse.org/
Support for siblings
Sib shops: Work shops that provide support and information and creative opportunities for siblings ages 6-13 of children with special needs. These work shops provide a chance for kids to meet and talk with other kids who’s brother and sisters have similar needs. 602-200-0767
Raising Special Kids
A support organization for families raising children with special needs. 602-242-4300
www.raisingspecialkids.org
Genetic Alliance
www.geneticalliance.org800-336-GENE
Miracle Flights for Kids Assisting families with travel needs for
medically necessary appointments out of state
800-359-1711
www.miracleflights.org
Arizona Early Intervention Program
A state agency providing services for children ages birth to 3 years with developmental delays or at risk of a disability. Online referrals:
https://egov.azdes.gov/azeip/AzeipREF/Forms/Categories.aspx
U.S. Department of Health and Human Services
http://www.os.dhhs.gov
888-447-2525
Donor Network 602-222-2200
Organ donations
MISS Foundation (grief support for families)
info@missfoundation.org
www.missfoundation.org
New Song: Center for grieving children
480-951-8985
info@thenewsongcenter.org
Trisomy 18/13 or other related disorders
http://www.trisomy.org/
http://www.trisomy18.org
NIH National Institutes of Health
http:///www.nih.gov/home.html
HLHS/Congenital Heart Defects support
http://www.littlehearts.org/Default.asp
http://www.sisters-by-heart.org/
http://www.chop.edu/service/cardiac-center/heart-conditions/
Osteogenesis Imperfecta
www.oif.org
DiGeorge syndrome
http://www.22q.org/
Genitopatellar syndrome
http://genitopatellar.org/
Holoprosencephaly (HPE)
http://www.carterdatabase.org/hpe/
Congenital Diaphragmatic Hernia (CDH)
CHERUBS -support for families
http://www.cherubs-cdh.org/
The International 22q11.2 Deletion Syndrome Foundation
http://www.22q.org/
Gastroschisis
http://averysangels.org/
http://cordblood.com/dtp/index.asp
(888) 932-6568 to speak to a cord blood educational specialist.
National Down Syndrome Congress
800-232-6372
www.ndscenter.org
Sharing Down Syndrome Arizona
http://www.sharingds.org/
Ryan House: Respite care home for children with life limiting conditions. Located in down town Phoenix: Ph: 602-200-0767 Fax: 602-200-0768
http://ryanhouse.org/
Support for siblings
Sib shops: Work shops that provide support and information and creative opportunities for siblings ages 6-13 of children with special needs. These work shops provide a chance for kids to meet and talk with other kids who’s brother and sisters have similar needs. 602-200-0767
Raising Special Kids
A support organization for families raising children with special needs. 602-242-4300
www.raisingspecialkids.org
Genetic Alliance
www.geneticalliance.org800-336-GENE
Miracle Flights for Kids Assisting families with travel needs for
medically necessary appointments out of state
800-359-1711
www.miracleflights.org
Arizona Early Intervention Program
A state agency providing services for children ages birth to 3 years with developmental delays or at risk of a disability. Online referrals:
https://egov.azdes.gov/azeip/AzeipREF/Forms/Categories.aspx
U.S. Department of Health and Human Services
http://www.os.dhhs.gov
888-447-2525
Donor Network 602-222-2200
Organ donations
MISS Foundation (grief support for families)
info@missfoundation.org
www.missfoundation.org
New Song: Center for grieving children
480-951-8985
info@thenewsongcenter.org
Trisomy 18/13 or other related disorders
http://www.trisomy.org/
http://www.trisomy18.org
NIH National Institutes of Health
http:///www.nih.gov/home.html
HLHS/Congenital Heart Defects support
http://www.littlehearts.org/Default.asp
http://www.sisters-by-heart.org/
http://www.chop.edu/service/cardiac-center/heart-conditions/
Osteogenesis Imperfecta
www.oif.org
DiGeorge syndrome
http://www.22q.org/
Genitopatellar syndrome
http://genitopatellar.org/
Holoprosencephaly (HPE)
http://www.carterdatabase.org/hpe/
Congenital Diaphragmatic Hernia (CDH)
CHERUBS -support for families
http://www.cherubs-cdh.org/
The International 22q11.2 Deletion Syndrome Foundation
http://www.22q.org/
Gastroschisis
http://averysangels.org/
